Fibrosis quística, una enfermedad hereditaria. Experiencia de una madre sobre la enfermedad. Un futuro repleto de colores

Abstract

Objective: To know the impact of the disease in affected children and their families, as well as adherence to treatment, quality of life and everyday coping of the disease.

Method: A literature review on the basis on the subject, in which no published studies that expose the biographical story of a mother whose child has the disease occurs is performed.

Results: It is stated clearly and closely follow the experience of the disease.

Conclusions: Currently the hospital has a very important role in health care, often being the nexus of the patient with the health system . The patient calls for greater knowledge about their disease and psychosocial care support from nursing. The impact of the disease on a child, you must not only know how it will affect their parents but what care by nurses should offer.